I finally got to the paddle boarding class this morning. It was SO beautiful.  Our guide took us through Mangrove tunnels and it was so cool. I can’t wait to go back and do the other tunnels. Our group was getting tired so we only were able to go through one. You can almost get lost in them as they wind around and you come out into little bays. Our guide took a lot of pictures and I will post some once he sends them to me.

http://www.ticketsarasota.com/2011/06/16/hidden-sarasota-south-lido-key/

 I was proud of myself, I didn’t fall in once and I outlasted a grandfather, mother and a 12 year old boy! That really surprised me. Once I get used to my own board, I am going to try the Yoga class. It looks like so much fun, plus what a great way to work on balance. One of the things I have lost the most through my Sarc is balance.  Doing Yoga on the board should really help with that.  

I also can’t wait to take my board up to Rockmere and get on the River. It will be easier than on the gulf.

 What a crazy couple of days! Because of both having Melanoma and Sarcoid, I have to be careful about my eyes, because both diseases can effect them. I was told originally to have my eyes checked every year. My last Opthamologist gave me the warning signs and told me I only needed to come back every 3 to 4 years unless I had symptoms. My eyes have been great, except for needing reading glasses which is driving me crazy. But lo and behold on Monday my left eye felt like there was something in it. I use Q-Tips around my eyes so I always get those little white strands in my eyes. Looked in the magnified mirror, couldn't see anything so back to my dad. Well about 2 am that next morning it was really driving me crazy so I went back to the mirror with a flashlight because it's easier to see the strands. Didn't see anything and when I took the flashlight away, I had that weird vision you get when a light flashes in your face. I kept waiting for it to go away and I noticed in the lower corner of my eye was a big black spot. It kind of freaked me out. When I took my dog out, the black spot would go almost white. Then back to black when I was inside. It wasn't getting ANY better after a good amount of time and I got really stressed. What if I did something to my eye? When I thought about my symptoms, dryness, redness, feeling like something was in it I began to think it was the Sarc. I got really concerned now. I noticed in about an hour, the black spot was gone but the other symptoms remained. So I made an eye appointment for the next day.  Of course what happened? I looked again with the flashlight(in the daytime this time) and actually found a large strand. I had a little trouble getting it out, but finally got it out. My eye didn't feel better immediately so I began to wonder if that was the cause of the irritation or not. By the time I woke this morning my eye was completely back to normal so I can take a nice deep breath......... I changed my emergency appointment for a full appointment just to be sure. They are due to be looked at anyway.

I can't tell you how relieved I am that I don't have sarc of the eyes. Anytime the inflammation spreads it's not a good thing. Especially with the eyes and especially since I have a double whammy with the melanoma and sarc. I will share a story with you about that, but that is for another day!!

I may have had to spend an hour and a half on the phone getting it figured out, but I finally have a domain for my blog!! So from now on please visit me at www.sarcoidosissurvivor.com!! How exciting is that!! Even the tech who was helping me got excited as we figured it out. It was a team effort so koodos for Google and for myself who is becoming a regular techie:-) I have even posted a few fixes on a techie site..who knew. I used to always describe myself as a tech flunky, but not anymore.

On the health front I am trying to get all my tests run so they can figure out why I am getting these fevers all the time. I've seen about 7 different doctors who have no clue, and even the infectious disease doc has no idea. Except they all say well it could be the Sarc. Anything can be the Sarc, ggrrr! I had a doctors appointment this morning and sat beside a woman wearing a doctors mask. She assured me she wasn't ill, that her husband had been getting these fevers and no one could diagnosis them and they finally did with a strain that is antibiotic resistant and he is in the hospital for 30 days!! No thank you!! He also has a weakened immune system....scary!

I also have a lesion on my thyroid gland that I need to get checked out. I have a CT scheduled and my doc wants to do another echo for pulmonary hypertension which really scares me. Plus it's time for my yearly eye exam and I currently have a kidney stone I need to get checked to make sure it hasn't grown. I have had so many lithotripsies that the docs are balking at doing anymore so it will be interesting to see how they want to get this bugger when the time comes. All the joys of being a sarkie!!