I may have had to spend an hour and a half on the phone getting it figured out, but I finally have a domain for my blog!! So from now on please visit me at www.sarcoidosissurvivor.com!! How exciting is that!! Even the tech who was helping me got excited as we figured it out. It was a team effort so koodos for Google and for myself who is becoming a regular techie:-) I have even posted a few fixes on a techie site..who knew. I used to always describe myself as a tech flunky, but not anymore.

On the health front I am trying to get all my tests run so they can figure out why I am getting these fevers all the time. I've seen about 7 different doctors who have no clue, and even the infectious disease doc has no idea. Except they all say well it could be the Sarc. Anything can be the Sarc, ggrrr! I had a doctors appointment this morning and sat beside a woman wearing a doctors mask. She assured me she wasn't ill, that her husband had been getting these fevers and no one could diagnosis them and they finally did with a strain that is antibiotic resistant and he is in the hospital for 30 days!! No thank you!! He also has a weakened immune system....scary!

I also have a lesion on my thyroid gland that I need to get checked out. I have a CT scheduled and my doc wants to do another echo for pulmonary hypertension which really scares me. Plus it's time for my yearly eye exam and I currently have a kidney stone I need to get checked to make sure it hasn't grown. I have had so many lithotripsies that the docs are balking at doing anymore so it will be interesting to see how they want to get this bugger when the time comes. All the joys of being a sarkie!!