I finally took the time tonight to sync my music to my new ipod(gee, don't I sound so down!). Believe it or not, this is not my first mp3 player. I got one 2 years ago so I could quit lugging around the tape player at my waist. Yes, I admit it I completely missed the CD thing. I bought one one thinking it would be better for running but found out the thing skipped as I ran and besides, since I wasn't burning my own, I would have to listen to the whole CD when I wanted only one song. I do have to say I don't know what took me so long to embrace progress and go for the mp3's. How much easier is it to download a song in 3 seconds than to put two tapes in a deck recording machine and then play the song and hit record. Even if you had fast record, it still took forever, you just had the enjoyment of listening to the chipmonks singing your favorite song. I was able to sync 63 songs in under a minute, how cool is that! Now I want a dock for the house and car.
Tomorrow I get the joy of getting my bone density tested and my bi-monthy blood work to make sure the chemo I'm taking isn't killing my liver. My bone density has been pretty bad the first 7 years I had it done. -3.7 and -3.4 and I can't remember the other number. Of course those numbers in a 30year old flipped the docs out and they first put me on Miacalcin which I loved because for me there no side-effects, until the nose bleeds. The first night I woke up with a nose bleed was very scary, I figured my cancer had spread or some such Mela-dramatic option as that until I remember that I took the spray. Then oh what a relief, but needed to change meds. I decided to go to the once a week fosomax. My first scan after we moved here was so much better, I had though the meds were miraculous until my rheumy reminded me that when you are not using the same machine each time, that it can skew results and since I had been using the other place since the very first time I got a bone density, he said those results would be more accurate. What a kill joy. So this will be the second time on this machine and we will see.
This will be my first blood work since starting the chemo that I will see what it's doing. If it's killing my immune system so I susceptible to every germ out there then it's doing its job. Since there are no approved meds to treat sarc except steroids, I have been given other meds that help other auto-immune diseases or cancers. We started with the gateway meds that did absolutley nothing and since there really aren't any middle of the road, although the med I am on is probably considered middle of the road. If chemo is considered middle ground, I was not thrilled to hear what the big guns were. All of these big guns were not approved by my insurance company because they were not approved to treat sarc. At one point my doc recommends thalidomide, wait a minute, isn't that the drug that caused all the birth defects. It was and my doc said it is being used with some cancers and it shows tumor shrinkage so It would be worth a try. Considering I had been in the hospital 7 times in the last year I figured it was time for drastic measures so I agreed. Because of the risk of deformities on fetus's had to have a blood test every month and use 2 forms of birth control. Well I figured I had that one beat as I had an emergency hysterectomy when I was 19. Nope, not good enough, they still wanted blood every month to prove I wasn't pregnant or they wouldn't give me the meds. I thought that was weird as I could prove I'd had the hysterectomy, but it was a mute point anyway as it turns out the meds are huge bucks and my insurance wouldn't pay. I've told my husband if I die, to sue the insurance company. So I am on this last ditch effort, praying my hair doesn't fall out and dealing with nausea that is getting through 2 nausea meds, although that is getting a little better.
So hopefully all will show up well. All thoughts and prayers accepted!
Good Night
Melissa
Tomorrow I get the joy of getting my bone density tested and my bi-monthy blood work to make sure the chemo I'm taking isn't killing my liver. My bone density has been pretty bad the first 7 years I had it done. -3.7 and -3.4 and I can't remember the other number. Of course those numbers in a 30year old flipped the docs out and they first put me on Miacalcin which I loved because for me there no side-effects, until the nose bleeds. The first night I woke up with a nose bleed was very scary, I figured my cancer had spread or some such Mela-dramatic option as that until I remember that I took the spray. Then oh what a relief, but needed to change meds. I decided to go to the once a week fosomax. My first scan after we moved here was so much better, I had though the meds were miraculous until my rheumy reminded me that when you are not using the same machine each time, that it can skew results and since I had been using the other place since the very first time I got a bone density, he said those results would be more accurate. What a kill joy. So this will be the second time on this machine and we will see.
This will be my first blood work since starting the chemo that I will see what it's doing. If it's killing my immune system so I susceptible to every germ out there then it's doing its job. Since there are no approved meds to treat sarc except steroids, I have been given other meds that help other auto-immune diseases or cancers. We started with the gateway meds that did absolutley nothing and since there really aren't any middle of the road, although the med I am on is probably considered middle of the road. If chemo is considered middle ground, I was not thrilled to hear what the big guns were. All of these big guns were not approved by my insurance company because they were not approved to treat sarc. At one point my doc recommends thalidomide, wait a minute, isn't that the drug that caused all the birth defects. It was and my doc said it is being used with some cancers and it shows tumor shrinkage so It would be worth a try. Considering I had been in the hospital 7 times in the last year I figured it was time for drastic measures so I agreed. Because of the risk of deformities on fetus's had to have a blood test every month and use 2 forms of birth control. Well I figured I had that one beat as I had an emergency hysterectomy when I was 19. Nope, not good enough, they still wanted blood every month to prove I wasn't pregnant or they wouldn't give me the meds. I thought that was weird as I could prove I'd had the hysterectomy, but it was a mute point anyway as it turns out the meds are huge bucks and my insurance wouldn't pay. I've told my husband if I die, to sue the insurance company. So I am on this last ditch effort, praying my hair doesn't fall out and dealing with nausea that is getting through 2 nausea meds, although that is getting a little better.
So hopefully all will show up well. All thoughts and prayers accepted!
Good Night
Melissa
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